My friend Jim, and Illinois GBS Liaison is headed to Washington DC to spread the word!
http://rareadvocates.org/december-6th-grifols-congressional-briefing-the-importance-of-plasma-therapies-in-treating-rare-diseases/ This is a great article-- if you're not already a memeber, become one-- It's FREE!
Enjoy... http://www.igliving.com/BlogEngine/post/What-Is-Your-Self-Care-Account-Balance.aspx Thank you to all of you who attended my first meeting! Dr. Waclawik presented a wealth of information and answered everyone's questions. I really got the feeling that everyone was satisfied! Again, if there is anything changes you'd like to see in future meetings or come up with new ideas, please let me know! I plan to have a meeting in Milwaukee in the fall to reach out to those who were unable to attend. I will hopefully be uploading the meeting on to my website so those who could not attend can see what went on an
Thank you thank you thank you for attending! This is exciting news! Thanks to the Australian researchers! Let's hope this goes through.. please read!
http://www.sciencedaily.com/releases/2012/05/120531102449.htm Good afternoon! I think the beautiful weather is finally here! Do I have to worry about snow flurries anymore? I sure hope not. A lot is going on in my world over here-- I've got the meeting coming up on Saturday, June 2. I wasn't too stressed out about it until I found out today that I have 500 address labels coming my way!!! I already had 200 made up to send out to hospitals, clinics and rehab facilities... I can't believe 500 people/businesses have contacted the Foundation BEFORE I became a Liaison. Yes, i'm stressed now. :) I still keep a smile on my face.
I am in the beginning stages of planning the GBS-CIDP Foundation International Charity Golf Classic which is scheduled for Saturday, August 4, 2012. It will be at Cold Water Canyon Golf Course in Wisconsin Dells, WI. The golf course is located at Chula Vista Resort off of Highway 13 in Wisconsin Dells. My mom and dad called me one night and asked me if I would like to go through with this--- they are AWESOME! My dad planned golf outings when we lived in IL so he's quite the master at them. My mom is the organized coordinator of the bunch so she is keeping track of everything! Sean is also helping where he can, and of course, I am putting the final word in. I will be needing a hand full of volunteers, so be sure to keep checking in on this site as I will post often! I also added a new page to my website... 'Tying the Knot'! A good friend of mine started her own business and has asked me to take part in it as well. As you will read, I will be the behind-the-scenes with all of the detailed creations for the bride and groom. Have you figured it out yet? I am taking part in Tying the Knot - A Wedding Planning business. Another piece to my puzzle. I hope you are all doing well! Please select the 'Contact Me' tab to let me know of any comments or stories you wish to share! |